pendrecarc: Blond woman looking over her shoulder; the caption reads "Watson" (Default)
Twelve things that happened in 2012, fannish and otherwise:

1. My grandfather, who is over 80, retired from his dental practice after a series of strokes and other medical problems. Cue major family drama.

2. My job became a hellish nightmare, as much as I continued to enjoy parts of it and appreciate my co-workers. Eventually I had several soul-searching conversations with my supervisor, and by the end of the year we had found a good balance. I really hope things continue to improve, because I do love this job.

3. I dropped more or less off the face of the internet.

4. I fell in love with my cello instructor. This was a bad idea. I then tried to fall out of love with my cello instructor. This is still a work in progress. It probably doesn't help that we're still spending almost an hour together every week in what's really an unavoidably intimate context, but I've never claimed to have much instinct for emotional self-preservation.

5. I participated in Sherlock Remix. The story I wrote was tricky but thoroughly worth it, and I loved the story I got in return.

6. I took two weeks of vacation in the spring: a long weekend in Boston followed by almost two weeks in Scotland, visiting several of my best friends IRL. It was amazing.

7. I met up with [personal profile] verity in person! From there, I embarked on a cross-country roadtrip with a college friend. I couldn't really afford the vacation time, but it was still worth it. Our route was gorgeous, and I now have a shortlist of places to go back and visit once I have some serious camping and hiking time available.

8. I had a good year re: the MS, but I exchanged most of the usual anxiety issues for what I'm now ready to admit was a nasty bout of depression. This wasn't a great trade. I seem to have switched back over the last couple of days, though; not sure how I feel about that.

9. I moved downtown. This was an excellent decision. My new housemates are wonderful (thank you, Craiglist), and I am in walking distance of many of the things I love most about this city.

10. Despite moving much closer to my church, I have stopped going on a regular basis. This was not an excellent decision, and it's something I need to work on this year. I miss it so much.

11. I was absorbed into the current fandom zeitgeist--yes, I mean Teen Wolf. I'm still just lurking, but it is the best kind of crack.

12. I participated in Yuletide. My offering was fun to research and to write, and my gift was the Magicians fic of my heart.

So, not a great year, though the high points were quite nice. Things do seem to be getting better. I'm cautiously optimistic about 2013.

MS Update

Oct. 15th, 2011 07:21 pm
pendrecarc: Blond woman looking over her shoulder; the caption reads "Watson" (Default)
I started daily Copaxone injections a year ago this month. )
 
So that's that. Symptom-wise, I'm doing quite well. The mild balance issues are still intermittent and, as I said, mild. I haven't toppled over yet, and it tends not to be a problem at all unless I'm turning my head or not paying attention to my stance. The hand tremor is so slight as to be unnoticeable unless I'm overheated, and even then it's just an irritation. Cognitive symptoms are harder to work out, because it's hard to establish a baseline. I sometimes wonder if I'm not having occasional brian fog, but I don't really trust my own judgement enough to say it's not just tiredness or normal distraction. The one thing I'm almost positive is a genuine symptom is the aphasia. It's mild, of course, and goodness knows I've always had a tendency to trail off in mid-sentence, but I'm floundering for the right word with such frequency that it's really hard to ignore. It's not that I forget the definitions--if I've got a computer handy I can use the thesaurus to find the word I want quite quickly--it's just that I'm frustrated by all the tip-of-the-tongue moments.

This last is definitely something to bring up at the neurologist's when I see him next month, because I really need either validation that it's a related issue or reassurance (?) that I'm reading too much into it. I'm getting better at being open and straightforward with him about my perceived symptoms. No MRI this time, but I think we might do another next spring.

I just noticed I keep using the word "mild". I can't tell if that's an honest assessment of the fact that I know it's nowhere near as bad as it could be or a less-than-productive way to minimise an actual problem.

Bzuh?

Aug. 16th, 2011 08:46 pm
pendrecarc: Blond woman looking over her shoulder; the caption reads "Watson" (Default)
From a relative, of whom I am actually very fond:

"I hope things are going well for you and that you feel ok most of the time and the rest of the time it's tolerable."

I just...really? I had to think about it for a minute before I understood what she meant. For the record, I'm feeling perfectly healthy. Well, my neck's a little tight, but I think that's just from poor keyboard positioning.

I'll be doing much better when The Good Wife comes back for the fall season, how's that?

(Relatedly, Sherlock authors, you can't look at someone and know they have Multiple Sclerosis. I have seen this in more than one fic, and the odd specificity of it confuses me.)

Well, crap.

Jul. 7th, 2011 06:34 pm
pendrecarc: Blond woman looking over her shoulder; the caption reads "Watson" (watson)
Horrible hand tremors this evening. I'm putting it down to heat sensitivity and trying to cool off a bit. It took me forever to spoon out some loose-leaf tea I'm sampling, and typing isn't much fun, either.

It sucks, is all, because let's be honest--these are early days. It's going to get worse.

But at least there's tea. </self-pity>

Aftermath

May. 30th, 2011 06:52 pm
pendrecarc: Blond woman looking over her shoulder; the caption reads "Watson" (Default)
Mildly saccharine takeaways from Wiscon, because the residual giddiness hasn't dissipated:

There are lots of lovely, friendly people out there writing great things and being wonderful human beings. I want to write better and be a better human being. This works out nicely, because they want to help me do that.

Nisi Shawl is amazing, and I'm a bit in love with Amal El-Mohtar.

Totally volunteering next year.

More detail later--I took notes in some of the panels, and I want to get my thoughts down before I start forgetting things.

***

The weather has been ridiculous lately, but it seems to have finally decided it's time for summer. This heat sensitivity thing is no joke, by the way--ten minutes' walk to lunch and back, and I felt like someone had stepped on me. I've had a mild hand tremor for some time now, and it was considerably worse this afternoon. My balance was fine this weekend, though, for which I'm grateful.

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pendrecarc: Blond woman looking over her shoulder; the caption reads "Watson" (Default)
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